Navigating Research Ethics and Managing Sensitive Data in Complex European Projects
29 February 2024, 11:00 - 12:00

Navigating Research Ethics & Managing Sensitive Data in Complex European Projects

Artificial Intelligence (AI) and Big Data are rapidly changing and evolving fields, they are strongly interwoven into both our society and culture and are increasingly viewed and criticised as disrupters of current conceptions of democratic governance and exchange. However, Knowledge Technologies for Democracy (KT4D) takes a different approach to AI and Big Data, framing these instead as Knowledge Technologies and an opportunity to improve civic participation in democratic governance.


This webinar aims to initiate a dialogue addressing the challenges associated with adhering to research ethics best practices, focusing particularly on the protection of user data and pseudonymisation. Performing research in accordance with ethical best practices is a high priority for projects large and small, and is of particular importance within those many projects where human beings are directly engaged, as research subjects, for the co-creation and validation of results, or as participants in project events. Unfortunately, however, the codes and rules for ethical best practice often don’t seem to fit easily with the goals, audiences, contexts, or resources of many transnational, multi-partner projects, such as those funded by the European Horizon programme.

This webinar seeks to open a discussion about the challenges of following research ethics best practices under these conditions, and will deal in particular with data protection and pseudonymisation. Pseudonymisation is a data processing operation that allows personal data to no longer be attributed to a specific individual without the use of additional information. The current regulatory landscape for Data Protection and Pseudonymisation can be confusing especially in relation to research practices. Therefore in this webinar two highly skilled experts in this area - Alberto Bettiol and Kate Francis of KT4D Partner organisation ICT Legal Consulting - will concretely demonstrate what KT4D is doing in practice for our Use Cases.

Join us to discover best practices for the digital era!

Registration is free of charge but mandatory. Please reserve your seat here below:






Title of Presentation

11:00 - 11:10

Jennifer Edmond (Moderator) 

Associate Professor of Digital Humanities at Trinity College Dublin, KT4D Coordinator 

When doing the right thing seems impossible: Making ethical best practice work in complex research projects

11:10 - 11:50

Alberto Bettiol, Partner, compliance & legal expert with specific focus on management of privacy related risks;

Kate Francis, Privacy & Ethics Researcher. Certified ECPC-B Professional DPO. PhD Candidate at the Maastricht University Faculty of Law. 

Preserving privacy while fostering innovation: How data protection can fuel ethical research

11:50 - 12:00 


Questions & Answers